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The NIH crafted one for patients enrolled in clinical trials, the American Hospital Association served one up in 1973, and many individual health providers like the University of Pennsylvania Hospital ( aka Penn Medicine) have developed patient bills of rights for consumers entering their hospital systems.
Some have called on policymakers to extend HIPAA to cover mHealth apps and other online platforms. In the latest post in our series — “The Health Data Goldilocks Dilemma: Sharing? ” — Deven McGraw and I argue that extending HIPAA is not a viable solution.
Venture capital businesses have recently funded hundreds of startups developing technology-enabled digital health products, including wearable devices, mobile health applications, telemedicine, and personalized medicine tools. billion has been invested in digital health this decade (see Exhibit 1).
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