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TEFCA: Ramping Up a National Framework for Trusted Exchange Yeager has been CEO of The Sequoia Project since it began in 2012. The Sequoia Project also channels the voices of consumers through a workgroup that currently has 50 participants, which is developing toolkits to educate and empower consumers and their data.
Some observers say there are ulterior motives – for instance see these 30 seconds of Yale cardiologist Harlan Krumholz at Connected Health 2016, on how a health system CEO told him flat out: “You don’t understand – why would we want to make it easy for people to get their healthdata?
However, distinguishing between the two forms of health IT tools can often be difficult, due to nebulous definitions and overlapping features. Patient portals give users an online view of their healthdata, as do PHRs. The patient accesses the information through a secure portal,” ONC says.
Where healthdata are involved, mistakes in identity can be a permanent privacy violation. Interoperability solutions FHIR Profiles Mobile Health Document Sharing (MHDS) – Published 2020-05-29 Section 50.7 Where patient treatment is involved, mistakes in identity can kill. MHDS Background 50.7.4 Specific to Patient: Section A.8.2.2.7
The initial ABIM strategy was to work peer to peer, doctor to doctor, and that first wave began in 2012 by asking several specialty groups to come up with lists of procedures that should no longer be routine.
In addition, a system that employs both telehealth/RPM and PERS provides clinicians with reliable electronically captured patient-generated healthdata (PGHD). While telehealth is often considered to be an equal experience to in-person care, the fact is that data gathered in clinics is often missing from telehealth encounters.
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